Dear Matthew
Dear Matthew;
I’m glad you are finally out of the hospital and that the
MRI showed that nothing was wrong with you. It is one of a parent’s biggest
fears, to have something deathly wrong with one of their children. I fear for
you often.
I remember when we took you home in 2000. You were about 5
days old, and wearing clothes for the first time… and you sure weren’t enjoying
it! You practically swam in that snowsuit that made you look like a starfish.
But this was the beginning- a permanent separator between life “before” and
life “now”. I was a dad now. I had been looking forward to this occasion for
many years, often in the fear that Jesus would come back before I had the
chance to initiate the process.
That very night you woke up crying. Mama and I both woke up,
and we stumbled around getting the bottle, the formula, making sure the thing
was shaken well and warm enough. A parenting class at the hospital can’t
prepare you for the reality of knowing that this little person, that came out
of the window instead of the door, was entirely our responsibility now.
No hospital, no nurses, just you and me, kid.
I lost my job two months after you were born. It was
something I wasn’t expecting, and punctured my spirit. When I got home, your
mama held out the only thing that was going to make me feel better- you. Little
two-month-old Matthew, smiling with that toothless smile all your own. You
restored my spirit then and you have continued to do it.
We anxiously awaited your first time crawling, your first
steps, your first words. Still waiting on that last one; probably should give
up on that one by now, but I can’t. I know you can’t help it, if you can’t talk
you can’t talk, it isn’t your fault. But parents have dreams. They dream of big
things, like seeing their daughter sink a winning basketball shot, or seeing
their son score the touchdown that wins the championship; a daughter who
graduates at the head of her class, a son who gets a scholarship; a daughter to
lead down the aisle, a son who will start his own family and likely do things
the same way his dad did them, for better or for worse. But they also dream of
small things. The first time they see their child ride a bike alone. The first
time they can make their own choices about what they like or dislike, developing
their own personality. Saying “Daddy” for the first time.
Just once. That’s all I would like, Lord.
My love for you has never ended and never will. This life
has been difficult, for your mama and I, and also for you. I don’t often think
about how hard things are for you, and that is to my detriment. You’re the one
who can’t tell me when he is in pain, or needs to use the bathroom, or wants
something to eat. You’re the one with autism, not me. But your daddy is a
little thick in the head sometimes, and he can’t see past the end of his own
nose.
The older I get, the less certain about things I seem to be.
I don’t know why you have autism. I don’t know why your sister has it.
Certainly one of many questions on my list for the Lord when I get up there to
see him, but that won’t be for another 50 years, 35 if I don’t quit drinking
Mountain Dew. In the meantime, my stock answer for all the mysteries of life is
“I don’t know.” But I’m supposed to know. Daddy is supposed to know everything.
He is supposed to be able to tell you why the sky is blue, and why the grass is
green, and why your nose faces down instead of up. Daddy is the one who is
supposed to be able to give you a reason why you can’t jump your skateboard off
the rocks at the river, a reason that doesn’t include the words “Because I told
you so.”
I don’t know why you can’t talk. I don’t know why you hurt
yourself. I don’t know why you hurt your mama, or your sister, or me. I know
you aren’t doing it spitefully, I would just like to know why you are doing it.
Because maybe then I can help you stop. For your sake, not mine. Hit me all you
want, I can take that. But when you hurt yourself, why that I cannot take.
Autism has robbed us of a good part of what fathers and sons
across the generations have been able to enjoy. But it can’t, and it won’t, rob
us of the core, the center, the axis around which the whole of our relationship
turns. I love you, Matthew. No matter how many times you hit me, no matter how
many holes you put in the walls, if you never say a word to me, my love for you
will not change. I’ll stand up for you, I’ll fight for you, I’ll even die for
you and then resurrect myself so I can get back in the game for you.
Because I love you.
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